What happens to adults with autism when parents die?

When assisting clients with end-of-life planning, I’ve worked with a number that have taken detailed steps to ensure that their adult children with disabilities continue to get the support they need.

In a recent article in USA Today (link to the article), the increasing incidence of children with autism is going to mean more people crafting their wills to ensure support for the their kids when they themselves are gone.

Estimates from The Centers for Disease Control and Prevention suggest that one in 45 children ages 3 to 17 has autism:  roughly 1.5 million kids.

Without consulting any books on biology, I deduce that today’s children will eventually become adults. And if these children have autism and require support, they will grow into adults with autism who also require support.

Finding support is a struggle that never really stops for parents.  And it continues well into adulthood. Unsurprisingly, as the parents age they begin to worry about their children’s well-being after they’re gone.

The article refers to the growing issue as a “tsunami of adults with autism”.

It would be easy to see this as hyperbole but the facts clearly show otherwise.

Fortunately, there are a growing number and variety of living spaces for adults with autism already in existence. The Age of Autism website features a decent overview of some of the options and gives some tips for establishing a living environment for those with autism.

There are facilities available for adults with autism. But finding them is a significant challenge for those looking to ensure their adult children are well cared for.

A good elder law attorney will work with clients looking to do draft wills and end-of-life directives to ensure their children are able to live in such facilities.

If you’re looking to do this kind of planning, please contact us at generationlaw.com.

The USA Today article can be read by clicking here.

If you need help making plans that include care for your adult children with special needs, please contact us at info@generationlaw.com.

Call us to set up your free 15 minute phone interview.

Ben Neiburger will speak at the upcoming AutismOne Conference taking place May 25-29 2016 in Chicago.